The Next Frontier

 
THE NEXT FRONTIER, the first Vermont autism and disabilities weekly
radio program from http://www.theradiator.org/ is airing
Wednesdays 10:00 am -11:00 am on
WOMM-LP 105.9 FM Burlington

FOLLOW Anne on TWITTER @anne_barbano


photo credit: Karen Dawson

Anne Barbano (in white) interviewing Andrea Marcotte (left) and
her mother Donna during the May 14, 2008 show. In the back
is engineer
Nick Malutama. Engineer Karen Dawson is
taking the photo.



If you would like to underwrite the production of this show
please contact me at abarbanovt@juno.com or use the form at The Radiator


This first show followed autism parents on the day the Autism Plan
Report was presented at the VT Statehouse. I want to thank Nancy
Richards, Gail Africa, Claudia Pringles and Linda Luxenberg for before-
and after-presentation remarks, as well as George Africa who was
my live on-air guest on Wednesday, February 6.

Listen to February 6 Show

Portion of Feb 6 Show with George Africa (20:54)


The second show features the talents of Bill Gallant and Bernie Looby
of Howard Mental Health.

Listen to February 13 Show



The third show is entitled "Why Can't I Work?" and features
Kathy Andrews and her son Andrew Sollace discussing issues
around supported employment for people with disabilities.

Listen to February 20 Show



The fourth show features Kim Mason, a cognitively-disabled adult who
had run as a candidate for the Burlington City Council the previous day.

Listen to March 5 Show



The fifth show features a conversation between Anne Barbano
and fellow radio host Harold Frost, who has the diagnosis
of Asperger's Syndrome.

Listen to March 12 Show



In the sixth show Anne speaks to two autism parents working hard on
the developing historic Vermont Autism Plan. One developes a petition,
the other works from the inside. The complexity of the autism world
goes beyond the diagnosis.

Listen to April 2 Show


Anne speaks with Randy Lamberti of the Vermont Autism Puzzle
Foundation, Carol Ortlip of the Inspire School for Autism, and Jess Levi,
a parent of a child with autism using alternative medical treatments.

Listen to April 9 Show


In the eighth show Anne speaks with a landscaper with a child with
autism, follows up on the third show by checking in with Andrew Sollace
at his current job, and speaks with author and autism spokesman
Sean Barron.

Listen to April 16 Show


Anne talks with Laurie Tedeshe, co-founder of the on-line autism
support group Autism Support Daily, and an advocate for reductions
of mercury.

Listen to April 30 Show


Anne talks with Marilyn Mahusky of the Vermont Disability Law Project
and Karen Schwartz of the Vermont Developmental Disabilities
Council regarding Vermont being out of compliance, waivers,
and EPSDT federal regulations for people with autism.

Listen to May 7 Show


Listen to a discussion between Anne and Colchester High School
senior Andrea Marcotte about Andrea's challenges with cerebral palsy.

Listen to May 14 Show


Anne talks with Larry Lewack of the National Alliance on Mental Illness
(NAMI) and consumer Sarah Robinson, who suffers from Bipolar II.
[program note: recorded ending of the show was lost due to a
transmission problem at WOMM-LP]

Listen to May 21 Show


10 years...6 shows a month...Meet Gigi Weisman, a community member
who has been performing for children for at least a decade!
But did you know she also wears another hat?
Working/playing in disabilities.
Music CD introduced too!

Listen to May 28 Show


Horse rescuer, logger, single mom of 4, twins with autism, one with
diabetes: Vermont renaissance woman Terry Holden talks
Skinner on the farm with Anne Barbano.

Listen to June 4 Show


One man's courage coming back to "normal" life. Meet disabled
veteran Ronnie LaBounty, who tells Anne about reentry into civilian life
and why its crucial for a veteran to "help a vet".

Listen to June 11 Show


Where the Two Shall Meet: Behavioral Medicine and
Augmentative Learning and Movement Center.

Listen to July 16 Show


Autism 911 Data Base. What is it? And it's not just for autism.
Guests Heidi Wener and VT Police Academy trainer Cindy Taylor.
Ben McCarty of the Be4Now band introduces charity single
Too Late To Wait to benefit the Red Cross.

Listen to July 30 Show


Discussion of controversial film 'Tropic Thunder' with autism and
downs syndrome parents, Claudia Pringles and Pat Powell. Surprise
guest, author / inspirational speaker Sarah Howell and her book
Ringo's Gift.

Listen to August 20 Show


Two young men with Aspergers, one is able to disclose it and
the other "keeps it in the closet". A very interesting conversation.

Listen to August 27 Show


Do you have children experiencing puberty for the first time? Did you
think sexuality was lost once your child was diagnosed?   Listen to
"Train the trainer" and peer sexuality educators as they discuss myths
and teachings regarding individuals with disabilities.  This and more
on the Sexuality Show topic. The Next Frontier autism and disabilities
radio program.

Listen to September 17 Show


"What an interesting guy!" the dj/programmer from another show said to
me as he was listening to this interview. I think you'll agree. Author of
the New York Times bestseller LOOK ME IN THE EYE, aspergian,
inventor, engineer John Elder Robison really gives one insight into the
possibility about what is happening in the autism brain and heart.
Truly delightful listening.

Listen to September 24 Show


Its highly controversial and yet practiced every day. Meet the area's
well known facilitator Pascal Cheng and two men who live by it ,
John McGinley and Mark Utter.

Listen to October 1 Show

Nancy Lurie Marks Foundation http://www.nlmfoundation.org/grants/communication.htm

Summary of studies with positive outcomes
http://www.inclusioninstitutes.org/index.cfm?catID=59&articleID=122

YOU TUBE 60 minutes facilitated communication controversy
http://www.youtube.com/watch?v=ay3nn2Eipm8

Demonstration of facilitated communication (UK)
http://www.youtube.com/watch?v=Eyzvt-yDrwo

Amanda Baggs Burlington, VT
http://well.blogs.nytimes.com/2008/02/28/the-language-of-autism/?apage=2


Three panelists who have autism talk about their work situations as
young adults . Recorded at the Creating Employment Opportunities training.

Listen to October 15 Show


We have two shows:

1. Bereavement: Find out how to tell your child...Ginny Fry
2. Build Your Family: A guide...Angela Timpone

Listen to October 22 Show


Timely Piece. Can you take 1/2 hour to Listen?

Key to understanding just what's going on and your own advocacy. Timely
piece with  former legislator and executive director Ed Paquin of
Vermont Protection and Advocacy.
 Additional four-minute piece on DD ACT. Write, give feedback its your
democracy . If the .mp3 file doesn't load quickly give it a few minutes.

Listen to November 19 Show


TALENTS AROUND US
Listen to music talent from the I.N.S.P.I.R.E for Autism School,
and Nate Taves with Non-Verbal Learning Disability as he talks
about his ability to create a production for a benefit for
Learning Disabilities Worldwide.
.
Listen to December 3 Show


Dr. Jeffrey Wulfman Vermont's first DAN (Defeat Autism Now) physician.
Recording sounds a bit like we're on the moon but hang in there good stuff! Contact info embedded in interview to give to your physician for dialogue
of this treatment with Brandon's Dr. Wulfman. who is employed by hospital,
NOT private practice.
Listen to December 10 Show


One parent's personal concern about looming budget cuts on the developmentally disabled

Meet parent Jim Charbonneau of a young child with the Vermont
Deaf/Blind Census who is still trying to get a diagnosis of cause.
Its the personal stories that drive the point of what fiscal
responsibility means. Take a listen for 35 minutes.

Listen to December 17 Show


Guest Linda Luxenberg speaks about opening the first autism center
in Vermont  next month. This adult center will be utilized primarily to
support employment as well as life skills. Find out more.

Listen to January 7 Show


Same Child, Different Day
January 14, 2009

  Rutland, VT parent Jon says he wrote this litttle booklet to share,
and perhaps help others during their initial diagnosis of autism.
This program was not recorded, but comments by folks who listened in
on our conversation have offered perspectives, including one who has
been in the trenches for a little bit now (me) and one newly indoctrinated (Jon).
It is insightful from that perspective.
Jon can be reached at his blog:

http://thesamechild.blogspot.com/search/label/Welcome


Friend Nick Morewood, 93 years young, self taught lawyer of Syrian
descent, father of adult child with a disability reflects on life.
Thank you, Nick. 31 minutes.

Listen to January 28 Show


Listen to mom and 8-year-old sister of a boy with autism and (long
diagnosis) obsessive compulsive anxiety avoidance behavior
describe their treatment plan, their thoughts, their fun. I mean using
the bathroom as an elevator - wow! 36 minutes.
Listen to February 11 Show


What happened after the vigils and rallies?  Find out how those that
 participated tried to SOS (Save our State) from Human Services
program cuts! 60 minutes.
Listen to February 25 Show


Come ,  take a walk with Todd Darling into this very hopeful
conversation as he talks about the door that opened up his daughter
Maleia's life. Fascinating story. When Maleia was born the Autism
Puzzle Foundation http://www.vtautismpuzzle.org/ was not a thought.
See how its grown , right along with Maleia!
Listen to March 18 Show


Enthusiastic Parents from Rutland CELEBRATE THE SPECTRUM
with Free Events all month long.

 Listen to what its like for mom to be away in basic training in the
National Guard for three long months from her son with autism.

Catch again this lovely melody from Inspire School for Autism
in Brattleboro! The talent among us!!
Listen to April 1 Show


You can't miss this one. Bet you didn't know the importance of Special
Needs Trusts. Listen with pencil and paper in hand to Attorney
Claudia Pringle. Then listen to Hocus Pocus Focus sung by next week's
guest Parent's Choice Award winner Cathy Bollinger!
Listen to April 29 Show


You'll be humming or singing these tunes to your kids . Delightful
listening from Cathy Bollinger who tells us how her songwriting
/educational CD's came about from her music therapy career.
Listen to May 6 Show

1990 American Disabilities Act.  2009 -  Still working on it. Vermont
prides itself on inclusion. Why do we still have issues around physical
access into our public buildings... Listen in on a conversation with
Michael Wood - Lewis  regarding this daily reality.
Listen to May 13 Show

"Inclusion can't be the reason we decide things for my son." Meet
Kathleen  Demeritt,  mom to son Chris with Angelman Syndrome. Her
fight to keep her one-on-one school position working with him raises
questions about values that will challenge your thinking.
Listen to May 20 Show

She's about to say her final goodbye to the non-profit she founded
in 1992, Vermont Parent Information Center. Connie Curtin talks
about the early years, why she began it and what lies ahead. Her
perspective comes from some unique experiences and stories that
engage the listener. And she answers the million dollar question.
(50 minutes
)
Listen to June 3 2009 Show


May 20 Show

You will learn more about Duchenne Muscular Dystrophy in a conversation
with Pat Furlong and be riveted not only by her knowledge but also by
her experience.
Listen to June 17 Show
Go to www.parentprojectmd.org after you listen to this
show for more information. And watch the 50 minute video here:
www.joost.com/02000df/t/Duchenne-The-Death-Gene#id=02000df
"Duchenne -The Death Gene". Pat's two sons, Christopher
and Patrick, died from Duchenne Muscular Dystrophy.

Diagnosed with Non-Verbal Learning Disability, college radio DJ
Edward Burke demonstrates his eclectic singing from 18th century
Christian hymns, music harmony of French-Canadian wooden spoons,
dulcimer, and jaw harps from Vietnam. Listen to this ensemble of
conversation with talented Edward Burke.
Listen to July 22 Show


How a breathing video game may help save lives. 29 minutes.

Listen to September 9 Show


Professor Susan Yuan, mother of Andreas with Angelman syndrome,
who has worked for more than 20 years promoting positive behavior
supports in Vermont schools. Listen and learn about the type of restraints
and seclusion used both here in Vermont and nationwide..

Listen to October 2 Show

You were suppose to give up your baby and deny it public school.
Listen to extraordinary stories on why and how Bill's Bill film was made.

Listen to October 21 Show

"I wasn't a patient. I was locked up" says Laura Ziegler who at age 17 was
locked up, diagnosed and forcibly drugged until a court ordered it stopped.
"They accidentally broke my arm" says Marj Berthhold relating to one of her
experiences in an institution. Co-director Nora Jacobson says
 understanding the mind is what holds her interests in documenting
experiences such as Marj's in the film "Tremors in the System".
When what you thought was reasonable treatment becomes questionable.
Listen in... (Also see DECONSTRUCTING TOXIC STIGMA: SURVIVORS
OF FORCED PSYCHIATRIC "TREATMENT" SPEAK OUT
at http://www.stigmanet.org/ )

Listen to October 28 Show


LAND lands in Burlington at the JDK Gallery

Special Guest : Marshall Harmon
Find out how artists from the autism community from
Down Under the Manhattan Bridge (DUMBO)
have grown in their artistry with the influence of a special art space.
25 minutes.

Listen to November 6 Show

Developmental Disabilities Goes to College and  SUCCEED

Developmental Disabilities goes to college with help from the
SUCCEED Program . Find out about this supportive program
from the HowardCenter.
Guests: Mark Prior and Jeremiah Tetreault

Listen to November 18 Show


He's known in twitterland as @follownathan.
He was a man with a plan, riding 4300 miles in 5 months across
America on his bike to talk agriculture. Off the bike but not the subject,
meet Nathan Winters!

Listen to December 2 Show

Supporting people of all abilities in pursuing relationships (love,
marriage etc.) Listen as guests Emily Anderson and Edward Burke of
The Awareness Theatre and performance artist Peter Burns bring us
into the world of self advocating for all aspects of human development.
Later, host Anne and Emily talk about growing up with deaf grandparents. Interesting discussion!!

Listen to December 23 Show


EMAIL: The budget situation for developmental services is alarming!
Vermont governor's budget cuts 2010. Guest Karen Schwartz
(VT Developmental Disabilities Council) calls in with
what that means. (17 minutes)

Listen to January 27 Show (part 1)


Author and parent advocate Jacqueline Williams-Hines of the
No Small Victories book series (books for your child's classmates
and families . (22 minutes)

Listen to January 27 Show (part 2)


Maybe you've heard of VOC REHAB. Interesting information
on what exactly they are and do, and how they impact the
developmental disabilities community.
Guests: Hugh Bradshaw and Eric Johnson (37 minutes)

Listen to February 3 Show


Meet Bill Ashe, Executive Director of Upper Valley Services
and Betty Milizia, former Director of Governmental Affairs for
ARC of VT and the parent of a young man with a developmental
disability. How will taking more away from the pie ensure that quality
 developmental services can continue? Helpful tips on how to educate
your legislators. (57 minutes)

Listen to February 10 Show


Vermont's historic autism insurance bill with Ron Marcellis,
Jon and Lori Gilbert, and Judith Ursitti from Autism Speaks.
(57 minutes)

Listen to February 17 Show


"RUNSICKboyRUN" gets your attention, and leads listeners to
Ronnie Sharpe, advocate for people with cystic fibrosis.
(56 minutes)

Listen to March 10 Show


Vermont State Senator Bill Carris of Rutland County discusses the
Autism Insurance Bill that is currently under consideration. (21 minutes)

Listen to April 7 Show


Grandmother and CEO Melinda Moulton, proponent of environmental
approach to autism, and daughter Mariah Riggs speak of one
family's conscienceness of raising their child with autism during the
early years. (61 minutes)

Listen to April 14 Show


Have a new look at how effective puppets can be in getting the
attention of children who have real questions about subjects that are not
always pretty. We cover autism here but lets hear how issues such
as sexual abuse are also handled. PUPPETS IN EDUCATION.

(Karen Newman has been a Vermont educator for the past 20 years, a
classroom teacher, literacy specialist, and now as Program Director of
Puppets in Education, which includes Kids on the Block-Vermont and
their new program about Autism, Friend 2 Friend-Vermont.)

(58 minutes)

Listen to April 21 Show


Guest Marianne Russo (aka @ChildAnxiety) founder of @CoffeeKlatch,
the Twitter Tweet Chat for parents of special needs children. The journey
to medical intervention that began to give her answers. (59 minutes)

Listen to May 12 Show


VERY informative interview with Dr. Steve Contompasis MD on the new
DSM 5 proposed for 2013. Find out WHY DSM is important in
diagnosing autism spectrum disorder and how the current DSM is
about to change. You really should send this link to your doctors to share
and discuss. (51 minutes)

Listen to May 18 Show


OK he hooked me with this. "My name is Tanner. My name is Tanner."
Last words spoken by Tim Welsh's son. The politics of autism brings us
to this broadcast from the Autism One conference in Chicago.
Tim introduces some of the participants at the conference and
The American Rally for Personal Rights. Vaccines or no vaccines - you
gotta listen. (58 minutes)

Listen to May 26, 2010 Show


A young man with bipolar disorder discusses his life with this condition,
and living without medications. (42 minutes)

Listen to June 30, 2010 Show


Peter Flom surprises listeners with the many details of his non-verbal
learning disability. He is just a guy with a Ph.D, married with 2 children
who may get lost if not for New York City’s numbered street system.
Next time a guy (or a gal) is standing too close, or looking too long,
think about some of what Peter has to say. This interesting man brings
insight to what a learning disability may look like and means. (42 minutes)

Listen to July 14, 2010 Show


It's 9 year old Jaylen Arnold's commitment to end bullying while
managing his severe complex tourettes syndrome. Jaylen also happens
to have aspergars syndrome. Listen in on the many features of this
crusade as Jaylen and his mom Robin explain their process. You'll walk
away with something that will stick with you. (60 minutes)

Listen to July 28, 2010 Show


Please contact me as events happen. This program will also showcase
talents from the disability world. Thanks to all of you. The
world is ready to listen.


 

 


Links to other Sites

Autism Support Daily

AAWARE

Vermont Family Network

 

 

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